Being prepared for visits with your healthcare team ensures you’re organized and get all the information you need to take the best care of yourself. Prepare for your visits by writing down your questions and concerns. Your healthcare team is there to care for you and should take the time to answer your questions.
Tips to prepare for your appointment:
- Write down all your questions as you think of them.
- Bring your questions to your appointment.
- Ask all of your questions and write down the answers.
- Ask again if you don’t understand the answers.
- Take someone with you to your appointments (or have them join by phone or Zoom) who will also listen and ask questions.
- Ask if you can voice-record the visit.
The questions you ask your healthcare team can play a vital role in understanding and managing your unique diagnosis. Below you will find a list of questions about treatment, support, and more you may want to ask based on your specific diagnosis.
Questions about your lung cancer diagnosis
- How does the type of cancer I have affect my treatment options?
- What is my stage of lung cancer?
- How does the stage affect my treatment options?
- Has cancer spread to other parts of my body? Which parts?
- Will I need more tests before deciding what treatments are best for me?
- Should I seek a second opinion?
Treatment options for lung cancer
General lung cancer treatment
- What are all my treatment options?
- What type of treatment do you recommend for me and why?
- Is my treatment plan based on my biomarker test results?
- Will I need more than one type of treatment?
- What are the pros and cons of each type of treatment?
- What is the goal of my treatment (cure, stop cancer from growing, or help ease symptoms)?
- How can I learn more about my treatment options, such as chemo, surgery, radiation, immunotherapy, and targeted therapy?
- If my insurance does not cover the best treatment for me, what resources are available to help with access/payment?
- How long will I be on treatment before I know it is working?
- How often are my follow-up scans?
- When should we do another biopsy? Is liquid biopsy an option for me?
- What are the side effects of my treatment? How are these side effects managed?
- I want children in my future. Should I consider fertility preservation before starting treatment?
- Who is my contact person at the cancer center to answer any questions I may have?
- Can I still work during treatment?
- Can I travel during treatment?
Surgery
- What type of surgery is right for me and why?
- What are the risks of the surgery?
- What are the short-term and long-term effects after the surgery?
- How long will I be in the hospital?
- What side effects should I expect?
- Will I feel pain? If so, how will it be controlled?
- When can I get back to my normal activities?
- Have I had comprehensive biomarker testing?
- What are my biomarker results?
- How will my biomarker test results affect my treatment options?
- If biomarkers are found, how will that affect my treatment plan?
- Can my biomarker be treated with targeted therapy?
- Will I have targeted therapy as a pill or through an IV (in a vein)?
- How often will I get targeted therapy?
Targeted therapy
- How often will the radiation therapy be given?
- How many treatments will I have per week, and for how long?
- What side effects should I expect, and how do I manage them?
- Will I also need other treatments, such as chemotherapy or surgery? If so, when will I receive them, and in what order?
- Will I need a special diet during or after my radiation therapy?
- Can I drive myself to and from the treatment facility?
- Will I be able to continue my normal activities during treatment?
- After my treatment is complete, how often will I need to return for checkups?
- Will I have one drug or a combination of drugs?
- What is my chemo schedule?
- Can I drive myself to/from treatment?
- How will we know if the treatment is working?
- What side effects should I tell my healthcare team about?
- Can I prevent or treat any of the side effects?
- Will I have side effects after the treatment is completed?
- Can I take vitamins while I am on chemo?
- Do I have to eat certain foods or avoid certain foods?
Radiation therapy
- Is immunotherapy a part of my treatment plan? Why or why not?
- Which immunotherapy drug do you recommend for me and why?
- What are the benefits and risks of taking immunotherapy?
- What are the possible side effects of immunotherapy?
- What are the sign and symptoms of a severe reaction to immunotherapy?
- What should I do if I have a severe reaction to immunotherapy?
- What is the treatment for a severe reaction if I were to have one?
- What is being studied for the type of lung cancer I’ve been diagnosed with?
- Are there any clinical trials I should think about?
- What phase is this clinical trial?
- What are the risks and benefits?
- How long will the trial last?
- Who pays for the trial?
- What will I be asked to do?
- Can I learn the results of the trial?
Chemotherapy
Clinical trials
Immunotherapy
Side effects of lung cancer treatment
General side effects
- What side effects could I experience with my specific cancer treatment plan?
- Does everyone experience these side effects?
- How can the side effects of treatment impact my quality of life?
- What can I do to manage these side effects?
- Can side effects from treatment be prevented?
- What is palliative care and how can it help me?
- What can I do to best prepare for possible treatment side effects?
Palliative care
- Does my cancer center have a palliative care team?
- How can I make an appointment for palliative care?
- Is palliative care covered by my insurance?
- What kind of treatments can I expect with palliative care?
Lung cancer prognosis questions
- How will my treatment plan affect my daily life and activities?
- What is known about lung cancer coming back after treatment?
- What lifestyle changes or supportive care options could improve my prognosis?
- How can I access emotional and psychological support for my prognosis?
Lung cancer support questions
- Are there support groups available for me and my loved ones?
- Where can I get more information about lung cancer?
- Where can I get financial help?
- Where can I get treatment-related help such as wigs or transportation to appointments?
- Does my cancer center have a social worker or patient navigator that can help me? Can you refer me to a social worker?
Additional questions and considerations
- What cancer centers or universities specializein my type of cancer?
- Can I get a second opinion at one of thesecenters and still be treated by you?
- Will I need oxygen for certain activities or fortraveling by plane?
- Should I see any other specialists (physical oroccupational therapist, nutritionist, etc.)?
Questions about your lung cancer diagnosis
- What is my stage of lung cancer and what does that mean for me?
- Has cancer spread to other parts of my body? Which parts?
- Will I need more tests before deciding what treatments are best for me?
- How does the type of cancer I have affect my treatment options?
- Should I seek a second opinion?
Treatment options for lung cancer
General small cell lung cancer treatment
- What are all my treatment options?
- What type of treatment do you recommend for me and why?
- Will I need more than one type of treatment?
- What are the pros and cons of each type of treatment?
- What is the goal of my treatment (cure, stop cancer from growing, or help ease symptoms)?
- How can I learn more about my treatment options, such as chemo, surgery, radiation, immunotherapy, and targeted therapy?
- If my insurance does not cover the best treatment for me, what resources are available to help with access/payment?
- How long will I be on treatment before I know it is working?
- How often are my follow-up scans?
- When should we do another biopsy? Is liquid biopsy an option for me?
- What are the side effects of my treatment? How are these side effects managed?
- I want children in my future. Should I consider fertility preservation before starting treatment?
- Who is my contact person at the cancer center to answer any questions I may have?
- Can I still work during treatment?
- Can I travel during treatment?
Radiation therapy
- How will the radiation therapy be given?
- How many treatments will I have per week, and for how long?
- What side effects should I expect, and how do I manage them?
- Will I also need other treatments, such as chemotherapy or surgery? If so, when will I receive them and in what order?
- Will I need a special diet during or after my radiation ttherapy?
- Can I drive myself to and from the treatment facility?
- Will I be able to continue my normal activities during treatment?
- After my treatment is complete, how often will I need to return for checkups?
Chemotherapy
- Will I have one drug or a combination of drugs?
- What is my chemo schedule?
- Can I drive myself to/from treatment?
- How will I know if the treatment is working?
- What side effects should I tell my healthcare team about?
- Can I prevent or treat any of the side effects?
- Could I have side effects after the treatment is completed?
- Can I take vitamins while I am on chemo?
- Do I have to eat certain foods or avoid certain foods?
Immunotherapy
- Is immunotherapy a part of my treatment plan? Why or why not?
- Which immunotherapy drug do you recommend for me and why?
- What are the benefits and risks of taking immunotherapy?
- What are the possible side effects of immunotherapy?
- What are the sign and symptoms of a severe reaction to immunotherapy?
- What should I do if I have a severe reaction to immunotherapy?
- What is the treatment for a severe reaction if I were to have one?
Surgery
- Can my stage of small cell lung cancer be treated with surgery? If so,
- What are the risks of the surgery?
- What are the long-term effects after the surgery?
- How long will I be in the hospital?
- What side effects should I expect?
- Will I feel pain? If so, how will it be controlled?
- When can I get back to my normal activities?
Clinical trials
- What is being studied for the type of lung cancer I’ve been diagnosed with?
- Are there any clinical trials I should think about?
- What phase is this clinical trial?
- What are the risks and benefits?
- How long will the trial last?
- Who pays for the trial?
- What will I be asked to do?
- Can I learn the results of the trial?
Side effects of lung cancer treatment
General side effects
- What side effects could I experience with my specific cancer treatment plan?
- Does everyone experience these side effects?
- How can the side effects of treatment impact my quality of life?
- What can I do to manage these side effects?
- Can side effects from treatment be prevented?
- What is palliative care and how can it help me?
- What can I do to best prepare for possible treatment side effects?
Palliative care
- Does my cancer center have a palliative care team?
- How can I make an appointment for palliative care?
- Is palliative care covered by my insurance?
- What kind of treatments can I expect with palliative care?
Lung cancer prognosis questions
- How will my treatment plan affect my daily life and activities?
- What is known about lung cancer coming back after treatment?
- What lifestyle changes or supportive care options could improve my prognosis?
- How can I access emotional and psychological support for my prognosis?
Lung cancer support questions
- Are there support groups available for me and my loved ones?
- Where can I get more information about lung cancer?
- Where can I get financial help?
- Where can I get treatment-related help such as wigs or transportation to appointments?
- Does my cancer center have a social worker or patient navigator that can help me? Can you refer me to a social worker?
Additional questions and considerations
- What cancer centers or universities specialize in my type of cancer?
- Can I get a second opinion at one of these centers and still be treated here locally by you?
- Will I need oxygen for certain activities or for traveling by plane?
- Should I see any other specialists (physical or occupational therapist, nutritionist, etc.)?