New and Improved Lung Cancer Registry

First and Only Global Lung Cancer Registry

Through its Lung Cancer Registry, GO2 for Lung Cancer securely gathers information from lung cancer patients across the globe – providing researchers with rich data from which to identify trends that can lead to new and better treatments for lung cancer patients.

“The goal of the Global Lung Cancer Registry is to help researchers connect the dots between lung cancer patients around the world – finding hidden connections and turning them into answers to important questions,” said Laurie Fenton Ambrose, GO2 for Lung Cancer CEO and Co-founder. “And, importantly, the Registry allows patients to contribute directly to global research and become a critical part of the effort to find new treatments for their own disease.”

New and Improved

The new and improved Lung Cancer Registry relaunched in January 2022 with a user-friendly interface and intuitive design, and is available in English, Spanish, simplified Chinese, German, and French.

People living with lung cancer and their caregivers offer their experiences with diagnosis, biomarkers, treatment, side effects, quality of life and other survivorship issues in a longitudinal format, allowing researchers to move beyond clinical trials and see trends as they are happening.

Patients can view deidentified patient data and compare it with their own, receive information about clinical trials and Registry studies, connect with researchers and health care providers, advance their understanding about lung cancer, and use the secure Registry for medical record keeping.

ALK Survey

The Lung Cancer Registry has a new survey focused on ALK positive patients to understand treatment preference, treatment tolerability and side effects, treatment decision making and recommendations, and impact of treatment on quality of life. The information gathered will help the medical community better understand treatments, decision-making, and preferences, as well as quality of life for people being treated with ALK therapy.

People with lung cancer are living better, longer lives thanks to new therapies, breakthrough discoveries, and more personalized treatment. Learn more about the Lung Cancer Registry and join to help transform lung cancer survival.