My name is Marianne Gordon. In 2008, at 41 years old, I was rushed to the emergency room after passing out due to a collapsed lung. I had been seeing my doctor prior to this because my blood pressure kept mysteriously dropping which was attributed to some sort of heart condition. Once I was seen in the ER, doctors discovered that I had small cell lung cancer (SCLC). A six centimeter tumor was pressing on my heart, causing my symptoms.
Since my diagnosis, I have been in treatment except for a two-year break. I have been on my current treatment plan for almost two and a half years and am doing well. Throughout my journey I have leaned on my faith to hold on to hope, grace and love. Humor has also always helped me stay positive. Making others laugh or helping others lifts me up; it is empowering to feel useful.
One time, I scratched out “terminal” cancer on my chart and my doctor asked, “What are you doing?”
I said, “I’m scratching out ‘terminal’ and putting ‘chronic’ instead!”
Advice I would give to someone newly diagnosed is to “doctor shop.” During the second year of my SCLC journey, I changed doctors and found my current doctor, who is the head of the tumor board and was an answer to my prayers. He decided to do radiation on my adrenal tumor and then surgery, which was not very common back then. Getting a second opinion is so important to make sure you’re able to weigh all your options. I would also recommend finding support, such as people from your family, church, or book club– it doesn’t matter where you find them, but you need close friends who you can call in the middle of the night. At church, before my diagnosis, I was known as Lucy’s daughter because I didn’t interact with people much. Now my mother is known as Marianne’s mother!
My final piece of advice is don’t pay too much attention to the statistics. My doctor said I had a 5% survival rate, so I focused on traveling with my daughter and making memories with her. That was 13 years ago. Don’t go crazy with your finances because you could live a very long time! You are going to have good days and bad days. There will be days when you may panic. It’s okay. You don’t always have to be positive; you just have to rely on the supportive people in your life.
Marianne, your story is so inspirational and resonates with my as a fellow survivor of SCLC. My journey began three years ago and each day is a rollercoaster of emotions. Your advice is awesome and I am so grateful I took the time to read it. Thank you.
Great story and attitude!!! GO GIRL!!!
Hello Marianne — your story is amazing and inspiring. I was diagnosed with ES sclc in December 2021. Went through chemo- and immunotherapy and soon will start chest radiation therapy. Right now, I am all clear, but we all know that sclc returns, and rather sooner than later. Thus, I am looking for second opinion as my doctor follows standard treatment only and he not an expert in sclc (it looks like i already know more that he about new areas of research in this sphere. Did you participate in clinical trials? And also — what is you current treatment? This would be really helpful! Thank you in advance. Elena Davydova
Thank you for sharing your journey. Thank you for the hope!
What a wonderful story! Very inspiring – I want my story to sound like yours!
I just love that you crossed out terminal in your chart-definitely made me smile. Blessings to you.
Wow I’m very impressed with your story since the various similitudes with my case, glad to read you here
Best wishes
I love your story and your attitude. You’re an inspiration. Thank you for sharing.
Marianne, You are a hero to all of us survivors. I lost 2 of my sisters to SCLC and 1 sister to NSCLC. I’m 18-year survivor of NSCLC. So good to see that there can be long-term survival for SCLC. Both of my sisters died within a year of diagnosis. a sense of humor is so important as is the courage to not accept yourself as a statistic. Best wishes, Joyce