Question: There is not a lung cancer support group near me, and I would like to start one. What do I do?

Answer: You have come to the right place! For decades, GO2 has monitored lung cancer-specific support groups across the country, so we know where to refer people who are seeking that type of support. Our research shows that people diagnosed with lung cancer prefer to attend groups that are specific to people living with lung cancer, as opposed to those that welcome people with any type of cancer, so you are not alone in hoping to find or start a lung cancer support group.  

There are a few essential things to consider when starting a group: 

1. Where or how will the group meet? 

When the pandemic hit in 2020, most groups met in–person and had to make the switch to meet virtually on a platform like Zoom. Many stayed virtual, while others are meeting in–person again. Some are trying a hybrid model with in-person and virtual attendance.  

If you’d like to start a virtual support group, keep in mind that some of the free platforms have restrictions. For example, Zoom is free for meetings under 45 minutes, but requires paying for the service if your meeting is longer than that. If you’d like to meet in-person, think about your area. Churches, libraries, and even some restaurants may offer meeting rooms for you to use at no charge.

2. How often will the group meet?

Most cancer support groups meet once a month, but some meet more frequently. We know of groups that meet twice a month or weekly, depending on the needs of the group. 

3. What day and time is right? 

If you are in an area with a lot of retirees, a daytime meeting might be best as because they generally have more free time, and some do not like to drive at night.  

If you think your population may still be working, an evening group is likely to suit the needs of your members better.  

Once your group is established, check with your members to learn about their preferences so you can ensure that as many can attend as possible.

4. What format is right?

Some groups gather to share experiences and support one another. Others are only educational and feature expert speakers. Some are a combination of both. 

You can decide and/or ask the members which they prefer.

5. How much time do you have?

Sometimes, people think all they need to do to start a support group is to find a place, set a time and date, and the people will come. It’s usually not that easy. Getting the word out, finding new attendees, sending out reminders, and follow-up messages all take time. Be sure you have enough time to make your group a success.  

GO2 for Lung Cancer offers a free guide to help start a lung cancer support group that can be mailed or emailed to anyone interested in organizing a support group. If you would like to receive a copy, have any questions about lung cancer, or want to find an existing support group, please call our HelpLine at 1-800-298-2436 or email us at support@go2.org.